ellid: (elisabetta gonzaga)
*smacks internal Stephan Dedalus upside the head with grandfather's hand-forged cast iron poker with the solid brass handle*


Actually, I drove to Boston today, in the snow and the rain and, as I neared Boston, the heavy fog on Route 2 as I passed the Angel Moroni that adorns the hideously ugly LDS Temple in Belmont, Massachusetts. It was time for my rescheduled appointment at Mass Eye & Ear for my semi-annual acoustic neuroma check up.

Mediocre news: a hearing aid or assistive device will not help with the tinnitus, nor will it improve what hearing is left on the right side.

Mediocre news: the vertigo I had on New Year's was not due to a virus or an infection, but the neuroma reminding me that it was still there, squatting evilly on my balance nerve.

Good news: not only has the neuroma not grown since my diagnosis, it appears to have shrunk slightly. My doctor said that this makes me one of the lucky 45% of AN patients who experience no growth, and one of the even luckier 14% who show some shrinkage.

Even better news: if my next MRI (2011) shows no new tumor growth, I'll be considered clinically stable and can switch from having an MRI once a year to one every two years.

Best news: given the above, I probably will never have to have the neuroma removed.


My doctor was very, very pleased, since no surgery means no diminishment of my quality of life. I'll never get back the hearing that I've lost, but the status quo is just fine :)


Very satisfactory. :)

Date: 2010-02-25 02:02 am (UTC)From: [identity profile] timetiger.livejournal.com
I'm glad the nasty thing has shrunk and congratulate you on the happy prospect of no surgery.

Date: 2010-02-25 03:36 am (UTC)From: [identity profile] ellid.livejournal.com
Thank you. It's been in the back of my mind ever since my diagnosis in 2006 :)

Date: 2010-02-25 02:53 am (UTC)From: [identity profile] etienetteblue.livejournal.com
Cheers on such good tidings!

Date: 2010-02-25 03:36 am (UTC)From: [identity profile] ellid.livejournal.com
Thanks! I was a bit nervous since the New Year's vertigo, so it was a real relief to get such good news.

Date: 2010-02-25 03:37 am (UTC)From: [identity profile] ellid.livejournal.com
*grins*

*hugs*

Congrats on the move, BTW, and the new job!

Date: 2010-02-25 04:13 am (UTC)From: [identity profile] varianor.livejournal.com
Excellent news, all things considered. Also glad to see you made it back in the Slush of Doom.

Date: 2010-02-25 11:58 am (UTC)From: [identity profile] ellid.livejournal.com
It was more the Fog of Doom, at least on Route 2.

Date: 2010-02-25 04:27 am (UTC)From: [identity profile] lherelenfeline.livejournal.com
ver good news, that

Date: 2010-02-25 11:59 am (UTC)From: [identity profile] ellid.livejournal.com
Thanks!

Date: 2010-02-25 11:21 am (UTC)From: [personal profile] tree_and_leaf
tree_and_leaf: Watercolour of barn owl perched on post. (Default)
Hurrah! Despite the hearing loss, that's fantastic news.

Date: 2010-02-25 12:00 pm (UTC)From: [identity profile] ellid.livejournal.com
I've gotten used to the hearing problems, and my co-workers by and large know about it and understand. It's disappointing to learn that a hearing aid won't help, but I'll deal.

Date: 2010-02-25 11:41 am (UTC)From: [personal profile] aunty_marion
aunty_marion: (IDIC)
That's good to hear!


(Sorry about the pun...)

Date: 2010-02-25 12:00 pm (UTC)From: [identity profile] ellid.livejournal.com
You're a fan. It's allowed :)

Date: 2010-02-25 01:49 pm (UTC)From: [identity profile] hak42.livejournal.com
Yay for good news!

So, did they try to sell you a hearing aid anyway? That's what they did to me. "Your hearing is testing to be near perfect, so we don't know why you have trouble hearing people and the hearing aid probably won't help, but we'll sell you one for $1000+ anyway."

Date: 2010-02-25 02:31 pm (UTC)From: [identity profile] ellid.livejournal.com
No. In fact, Dr. McKenna told me not to waste my money since the hearing in my left ear is practically perfect.

Date: 2010-02-25 11:22 pm (UTC)From: [identity profile] persevero.livejournal.com
Concentrating on the latter end of your post, that is excellent news.

Date: 2010-02-27 04:26 pm (UTC)From: [identity profile] orphandani.livejournal.com
ext_80247: (Default)
Best news: given the above, I probably will never have to have the neuroma removed.


WOOHOO!!! *happy dance*
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